Mental Health: MHU: Advance Statements in mental health

Welcome to a special issue of Mental Health Update on Advance Statements. Jayne Lewis and I first visited this topic in 2014 when the new Mental Health Act was introduced. This updated version includes journal articles, web pages, guidelines and videos concerning the consumer, family and service experience since 2014, as well as looking at learnings from overseas. It includes:

• What is an Advance Statement? 
• Victorian Mental Health Act 2014 (legislation and supporting guidelines)
• Advance statements - the Victorian experience (consumer, carer and clinical viewpoints)
• Advance statements & advance directives outside Victoria (barriers, preferences, implementation)
• Shared decision making

Most of these resources are freely accessible, but articles marked with an asterisk* require an SVHM login for offsite access. Readers from other organisations are welcome, but please note that some links will not work for you, and this library can only supply subscription based full text resources to SVHM staff and students. SVHM staff may request an Endnote library of these citations. To subscribe to Mental Health Update please email helen.wilding@svha.org.au

Last updated 30 Aug 2018 by HW

"An Advance Statement documents what treatment you would like in case you require compulsory mental health treatment. Treatment means the things used to relieve the symptoms and distress caused by being unwell.

In the event that you receive compulsory mental health treatment, doctors and other people in your treating team have to consider what treatment you would like, including preferences you have written in your Advance Statement.

Advance Statements are not required to be considered if you are receiving voluntary treatment, but it could still be a useful way for you to let your doctors know what treatments you prefer."

from Advance statements under the Mental Health Act in Victoria. State of Victoria - Department of Health. Melbourne; 2014. Read full document

• Mental Health Act 2014. Victoria; 2014. Read legislation

• Advance statements under the Mental Health Act in Victoria. State of Victoria - Department of Health. Melbourne; 2014. Read document

• Advance statements [web page]. State of Victoria - Department of Health. Go to web page

• Advance statements [video]. State of Victoria - Department of Health. 2015 Watch video

Consumer experience

• Guide to advance statement. Victorian Mental Illness Awareness Council. Read guide

• Advance statements and nominated persons: A survey exploring consumer attitudes, experiences and perspectives. Victorian Mental Illness Awareness Council. 2018. Read survey results

• Consumers’ experiences of mental health advance statements. Maylea C, Jorgensen A, Matta S et al. Laws, 2018, 7(2) Read article

• Exploring advance statements for mental health through storytelling. Turton-Lane N, Clarke Y. Health Issues, 2014(111):15-18 Read article*

• Support in treatment decisions. Healthtalk Australia. Access web page and videos

• ​How to increase participation in decision making. Healthtalk Australia. Access web page and videos

• New videos about using advance statements and appointing a nominated person. Independent Mental Health Advocacy. 2018. Access web page and videos

Clinical experience

• Advance statements in the new Victorian Mental Health Act. Saraf S. Australasian Psychiatry, 2015, 23(3):230-232 Read article

• ​Australian psychiatrists' support for psychiatric advance directives: Responses to a hypothetical vignette. Sellars M, Fullam R, O'Leary C et al. Psychiatry, Psychology and Law, 2017, 24(1):61-73 Read article*

• Perspectives on the Mental Health Act 2014 (Vic). Cross H, Rauchberger I, Kulkarni J. Australasian Psychiatry, 2014, 22(6):569-572 Read article*

Family and carer experience

• Carers and supported decision making mechanisms. Healthtalk Australia. Go to web page and videos

• Carers’ views on advance statements and nominated persons. Healthtalk Australia.  Go to web page and videos

The law and human rights

• Psychiatric advance directives in Australian mental-health legislation. Ouliaris C, Kealy-Bateman W. Australasian Psychiatry, 2017, 25(6):574-577 Read article*

• Psychiatric advance directives and human rights. Weller P. Psychiatry, Psychology and Law, 2010, 17(2):218-229 Read article*

Benefits and potential

• Psychiatric advance directives, a possible way to overcome coercion and promote empowerment.  Khazaal Y,  Manghi R,  Delahaye M et al. Frontiers in Public Health, 2014, 2:37 Read article

• ​Advance directives in mental health care: Evidence, challenges and promise. Zelle H, Kemp K, Bonnie RJ. World Psychiatry, 2015, 14(3):278-280 Read article

• ​Service user and clinical perspectives of psychiatric advance directives in New Zealand. Thom K, O'Brien AJ, Tellez JJ. International Journal of Mental Health Nursing, 2015, 24(6):554-560 Read article*

• A typology of advance statements in mental health care. Henderson C, Swanson JW, Szmukler G et al. Psychiatric Services 2008, 59(1):63-71 Read article

• Unpacking the psychiatric advance directive in low-resource settings: An exploratory qualitative study in Tamil Nadu, India. Shields LS, Pathare S, van Zelst SD et al. International Journal of Mental Health Systems, 2013, 7(1):29 Read article

Challenges to overcome

• ​Determinants of completion and use of psychiatric advance statements in mental health care in the Netherlands.  Ruchlewska A,  Kamperman AM, Wierdsma AI et al. Psychiatric Services, 2016, 67(8):858-863 Read article

• Embedding advance directives in routine care for persons with serious mental illness: Implementation challenges. Kemp K, Zelle H, Bonnie RJ. Psychiatric Services, 2015, 66(1):10-14 Read article

• A review of barriers to using psychiatric advance directives in clinical practice. Shields LS, Pathare S, van der Ham AJ et al. Administration & Policy in Mental Health, 2014, 41(6):753-766 Read article*

• A survey of stakeholder knowledge, experience, and opinions of advance directives for mental health in Virginia. Wilder CM, Swanson JW, Bonnie RJ et al. Administration & Policy in Mental Health, 2013, 40(3):232-239 Read article

Consumer preferences

• Advance statements: Survey of patients' views and understanding. Foy J, MacRae A, Thorn A et al. Psychiatric Bulletin, 2007, 31(9):339-341 Read article

• Narratives of individuals concerning psychiatric advance directives: Qualitative study. Ambrosini DL, Bemme D, Crocker AG et al. Journal of Ethics in Mental Health, 2011, 6(Suppl):1-9 Read article

• Advance statements for borderline personality disorder: A qualitative study of future crisis treatment preferences.  Borschmann R, Trevillion K, Henderson RC et al. Psychiatric Services, 2014 Read article

• Preferences for instructional or proxy advance directives in mental health: An exploratory mixed methods study. Ambrosini DL, Crocker AG, Latimer E. Journal of Ethics in Mental Health, 2011, 6 (Suppl):1-19 Read article

• Medication preferences and adherence among individuals with severe mental illness and psychiatric advance directives. Wilder CM, Elbogen EB, Moser LL et al. Psychiatric Services, 2010, 61(4):380-385 Read article

• What service users with psychotic disorders want in a mental health crisis or relapse: Thematic analysis of joint crisis plans. Farrelly S, Brown G, Rose D et al. Social Psychiatry & Psychiatric Epidemiology, 2014, 49(10):1609-1617 Read article

• Informed, advance refusals of treatment by people with severe mental illness in a randomised controlled trial of joint crisis plans: Demand, content and correlates. Henderson C, Farrelly S, Flach C et al. BMC Psychiatry, 2017, 17(1):376 Read article

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Facilitating implementation

• Facilitation of psychiatric advance directives by peers and clinicians on assertive community treatment teams. Easter MM, Swanson JW, Robertson AG et al. Psychiatric Services, 2017, 68(7):717-723 Read article

• How should we implement psychiatric advance directives? Views of consumers, caregivers, mental health providers and researchers. Henderson C, Jackson C, Slade M et al. Administration & Policy in Mental Health, 2010, 37(6):447-458 Read article

• Increasing the use of psychiatric advance directives. Olsen DP. Nursing Ethics, 2017, 24(3):265-267 Read article

• Using a hypothetical scenario to inform psychiatric advance directives. Van Citters AD, Naidoo U, Foti ME. Psychiatric Services, 2007, 58(11):1467-1471 Read article

• Evaluating the introduction of joint crisis plans into routine clinical practice in four community mental health services. Williams TM, Smith GP, Lumbus AM. Australasian Psychiatry, 2014, 22(5):476-480 Read article*

• ​Advance directives for mental health care: Innovation in law, policy, and practice. Zelle H, Kemp K, Bonnie RJ. Psychiatric Services, 2015, 66(1):7-9 Read article

• Psychiatric advance directives as a complex and multistage intervention: A realist systematic review. Nicaise P, Lorant V, Dubois V. Health & Social Care in the Community, 2013, 21(1):1-14 Read article

Practitioners

• Clinical decision making and views about psychiatric advance directives. Elbogen EB, Swartz MS, Van Dorn R et al. Psychiatric Services, 2006, 57(3):350-355 Read article

• National survey of training of psychiatrists on advance directives to refuse treatment in bipolar disorder. Morriss R, Mudigonda M, Bartlett P et al. Bjpsych Bulletin, 2017, 41(6):320-324 Read article

• ‘Walking the tightrope’: The role of peer support workers in facilitating consumers’ participation in decision‐making. Cleary M, Raeburn T, Escott P et al. International Journal of Mental Health Nursing, 2018 Read article

• Shared decision making in mental health: The importance for current clinical practice. Alguera-Lara V, Dowsey MM, Ride J et al. Australasian Psychiatry, 2017, 25(6):578-582 Read article

• Two approaches, one goal: How mental health registered nurses' perceive their role and the role of peer support workers in facilitating consumer decision‐making. Cleary M, Raeburn T, West S et al. International Journal of Mental Health Nursing, 2018 Read article

• A qualitative exploration of patient and family views and experiences of treatment decision-making in bipolar II disorder. Fisher A, Manicavasagar V, Sharpe L et al. Journal of Mental Health, 2018, 27(1):66-79 Read article*

• Supported decision-making from the perspectives of mental health service users, family members supporting them and mental health practitioners. Kokanović R, Brophy L, McSherry B et al. Australian & New Zealand Journal of Psychiatry, 2018:0004867418784177 Read article*

• Decision making and support available to individuals considering and undertaking electroconvulsive therapy (ECT): A qualitative, consumer-led study. Wells K, Scanlan JN, Gomez L et al. BMC Psychiatry, 2018, 18(1):236 Read article

• Enhancing clients’ communication regarding goals for using psychiatric medications. Patricia E. Deegan, Elizabeth Carpenter-Song, Robert E. Drake et al. Psychiatric Services, 2017 Read article

• ​Self-stigma and consumer participation in shared decision making in mental health services. Johannes Hamann, Markus Bühner, Nicolas Rüsch. Psychiatric Services, 2017 Read article

• Barriers to shared decision making in mental health care: Qualitative study of the joint crisis plan for psychosis. Farrelly S, Lester H, Rose D et al. Health Expectations, 2016, 19(2):448-458 Read article